It's August 2nd now. Last post was back in last month, meaning I haven't blogged for a couple of weeks, which is not to say that I've been short of material. To tell the truth I've found a bit of difficulty concentrating on things, writing being one of them. But I reckon I can knock out a few words now, so here goes. It has reminded me that the effects of my condition include the obvious: mobility, speech; and the covert: breathing, swallowing; progress of which creeps on surreptitiously, springing surprises occasionally.
On the plus side, the lift has been installed successfully meaning the nightly struggle on the staircase is a thing of the past. Toby has been home on holiday from Dubai this week. He invited his friend Andy to come and assist him in doing a range of DIY tasks, some of which have helped in getting the house back in order following the installation.
Last Saturday Henry graduated from pre-school, with a first in Lego/Playdough Studies. We all went to the ceremony, which was energetically multicultural and highly enjoyable. Afterwards I entertained the family with a 'Come Dine With Me' meal. The menu started with Lightly Curried Crab Salad, followed by Duck Leg Confit, then apple tarte tatin. I was completely exhausted by the time the first course hit the table!
My mobility scooter was returned to Shopmobility and they refunded my money in full. It was the only solution but I've lost my independent form of transport together with the ability to feel independent. I hope my power wheelchair will soon be delivered.
Our old friend, Angie, has been giving me some alternative therapy which is intended to encourage my body's immune system to heal itself - so we'll see how that goes.
I did a sleep test last week the result being that I need to be provide with a machine to assist my breathing at night so that I sleep more deeply and feel better as a result. This came out of my most recent consultation at Queen Square when the specialist raised the future need for me to have an alternative route for nutrition inserted into my stomach. So many things to come to terms with!
Luckily I continue to enjoy the love and care of my family, and look forward to the holiday in Malvern we have arranged to enjoy together later this month.
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